The US (and the west in general, but especially the US) has a genuine problem with overmedicalization, driven in no small part by for-profit pharmaceutical companies having a financial incentive to sell medication and treatments to people. Part of fixing this problem involves admitting that it also affects autism, ADHD, OCD, etc. diagnoses, and that saying this is not erasure of people affected by those conditions.
Another unpopular opinion: making a medical condition part of your identity is generally not healthy, and if you’re upset about an “anti-autism diagnosis campaign”, there is a chance you have made a medical condition part of your identity.
I say this as someone with a childhood Asperger’s diagnosis who would no longer qualify for any kind of diagnosis.
Also, how can sacountry workout universal healthcare have such excessive diagnoses when so many aren’t even getting the healthcare at all?
These conditions are often diagnosed during childhood and youth, where most Americans are AFAIK covered by national programs as well as their parents’ insurance.
For adult diagnoses, there’s a selection bias towards people who have self-diagnosed and seek confirmation, which will logically lead to a diagnosis rate among patients that exceeds the true incidence of the condition in the general population (due to the selection bias), as well as a slightly or somewhat increased apparent incidence of the condition in the general population (due to people who self-diagnosed without actually qualifying for a diagnosis, but read enough about the condition to effectively lie their way to a diagnosis).
I don’t really see how it affects autism. I guess maybe ABA? I don’t know of any current treatments for it. If anyone’s making real money off of autism, it’s probably fidget toy and earplug manufacturers, and maybe some influencers. If there were serious money to be made then some big companies would likely be pushing back against a lot of the BS lately, but mostly it’s governments + news media (generally right wing) vs independent or small voices.
This cuts both ways. As a person with extremely real AuDHD I actively hide that information from most people because so I don’t have to have this exact fucking conversation with every person I meet. “ADHD huh, you know that’s over diagnosed right?”
Thanks doctor, I’ll make sure I write that information down so I can use it later.
Sometimes it’s even worse, and people get actively hostile about it. “Yeah, I might have a PhD as well if I had an Adderall prescription.”
It’s just not helpful. Let the doctors do their thing. If we catch some false positives then so be it. You worry about you, and let other people worry about themselves.
I was one of those false positives as a kid. It led to me being not just unnecessarily medicated, but near criminally overmedicated. From age 7, I was put on ritalin because I couldn’t focus in class (due to a combination of the fact that I had already learned most of what they were teaching me and some serious undiagnosed PTSD). At the worst, I was put on:
150 mg of Adderall XR
75 mg of Zoloft
600 mg of Welbutrin
some equally ridiculous amount of Stratera
A revolving door of antipsychotics, because my unstable mood had to be caused by bipolar disorder and not, you know, the incredible amount of unnecessary medication I was being force-fed every day
In the end, it turned out that I didn’t have ADD, but actually had PTSD that presented as inattentiveness due to the constant flashbacks I was experiencing. A couple months’ worth of EMDR treatments (which were very much a known technique when I was being medicated) got me to a place where I was able to function enough to hold down a job and take care of myself, but it took me a decade after getting off of those medications for me to be able to recognize that.
My point in all of this is that false positives aren’t harmless, especially when it comes to minors. Yes, that doctor was giving me doses of medication that, today, would be considered criminal, but even being on a quarter of those doses caused significant damage to my long-term ability to function. Not to mention, I was treated as a lab rat the entire time. I was entered into trial runs of various medications against my will, and while some of them (such as clonidine) ended up being valid treatments, a significant part of me feels like the overmedication trend is just another excuse to treat children as science experiments.
Well no, what’s happening to you is also because of the general culture of overmedication. If there were less false positives, people wouldn’t distrust your diagnosis. If anything, I’d argue the current culture hurts the people who have serious issues more than the people who have been given a shoddy diagnosis in order to peddle drugs, but both sides are pretty rough.
If there were less false positives, people wouldn’t distrust your diagnosis
Did you come to this conclusion by talking to diagnosed people? Because even in the decades where it was massively under diagnosed, I don’t think there’s any time period I could point to and say ‘oh yeah, nobody questions autism diagnoses because they’re so rare!’ It just changes what they say: ‘oh, are you sure? That’s so rare, it’s probably something else!’
I have experienced both sides of this over the decades, and as far as I’m concerned I’d rather cast too wide a net than too small of one, because at least that way more people that need support get it. Being told you’re making it up sucks ass no matter which direction it’s coming from.
You hear people say the same thing about fake service dogs, but they only ever wind up harassing anyone with a service dog because they think it’s their responsibility to be a disability cop.
Paradoxically, I think we have both overmedicalization and a lot of people going untreated who need it. We are still pretty bad at identifying issues early and our for-profit healthcare system blocks a lot of people from being treated who need it. Often having mental health challenges itself limits people’s ability to access treatment.
On one hand i clearly agree with you about the overmedicalization issue, on the other hand there also was an undermedicalization going on for centuries, especially in the autism/ADHD/etc fields. It’s a tough balance to get, cuz the rise of diagnoses may not indicate an overmedicalization, but rather a correction of the undermedicalization (though the risk of overmed. is real, clearly).
And on the medical condition being part of an identity, i also get your point, but it’s also important to consider that making your differences part of your identity makes perfect sense, and for a lot of people their differences come from medical conditions. Conflating the two may be slightly unhealthy, but far less than repressing it as non-subject.
There’s a pendulum swinging towards the middle. Under diagnosis, and then ultra trendy diagnosis, huge self-diagnosis, general personality trend to align with. Now it’s going to swing back, likely towards biomarkers, as the DSM VI is trying to focus on. Can we see this on a scan? If so it exists. And then the DSM XII will be like “fuck that.” Mental health has always wobbled between extremes and somehow found the truth in the middle.
I don’t know about autism, but there is definitely some of that going on with ADHD for which medical treatment is much more common than for autism.
Autism patients do get prescription meds too, not for autism per se but for the various associated comorbidities (depression, anxiety, sleep meds, etc.). That’s all fine and good when there’s a genuine need for them; the problem is that big pharma has a business interest in making the barrier of prescription as low as possible.
Did you know water drinkers also get prescription meds too? Not for drinking water per se but for the various associated comorbidities with living…
I’m still confused how this is some indictment of autism diagnosis when it seems your issue has nothing to do with autism? Yet the campaign is specifically about autism. Not over-diagnosis of ADHD or depression or anxiety. Why does the one “mental disorder” that doesn’t actually have medical interventions seem to have some of the strongest negative reactions?
Exactly. It’s targeted. All medical conditions have some level of misdiagnosis. Mental illness and developmental disabilities. But people love to just zero in one diagnosis for this discussion which means it’s targeted and there’s an agenda behind it.
Nobody is getting an autism diagnosis to back up their comorbidities of depression and anxiety to get medication. If anything, people having a diagnosis of depression and anxiety is going to be a reason autism gets overlooked. If you want medication, you aren’t going to go through an autism assessment (cost, time, stress, etc) and then be like “oh yeah you know how I’m autistic, don’t you think that means I am depressed too? Pills please!” If that’s your thing you’d just go for the depression.
Autism has zero benefit trying to obtain medication and actually is LESS likely to go straight for medication because if you’re autistic then the first thing to do is make sure you’re not overloading yourself and managing your sensory issues and such before even determining IF there’s a reason to try drugs. Autisms first line of defense is environmental factors, self care, learning how to manage your energy and capacity, accommodations. The last resort is medication. Ffs I wish people would have a clue what they’re talking about sometimes.
This exact same phenomenon applies to almost any mental disorder. And I use the term mental disorder loosely here, as I’m one of the people who doesn’t believe mild cases of autism are even worth diagnosing.
The reason it applies to autism too is that any diagnosis makes you a customer of the medical industry; the customer relationship doesn’t end when you receive a diagnosis, that’s when it starts. They may not be able to sell you autism medicine (yet), but they can sell you all sorts of other medicine and therapy.
So autism diagnosis are bad because they’re trying to hook you on the drug of getting diagnoses and eventually given people medications maybe decades after their diagnosis?
Perfectly fine statement to make in a vacuum, but in the real world there are massive hurdles and downsides to getting diagnosed. I’ve interacted with more than one psych who has basically said that of those who have sought an adult diagnosis with him, they’re rarely wrong. Any image you have in your mind of hordes of neurotypical people making up that they’re autistic is based on prejudice, not reality.
There’s also not a single way to determine if someone is on the spectrum; a psych can run a test wrong or make wrong judgements, and a person doesn’t need a degree to know they have sensory meltdowns or can’t keep up socially to save their life. The idea that doctors are the only ones with insight into health (ESPECIALLY mental health) is something best left in the first half of the 20th century.
I also feel that making me self-diagnose with a disorder would be very useful for keeping me small and powerless. If the specific way my mind works doesn’t please late stage capitalism, late stage capitalism and its ‘helpful’ disgnoses can fuck right off while I go take a nap as nature intended.
I also feel that making me self-diagnose with a disorder would be very useful for keeping me small and powerless
That’s a valid way to feel, but for many people on the spectrum it’s the exact opposite. A diagnosis is an answer for why in NT spaces we often feel constantly misunderstood and out of place, and reassurance that we aren’t the only people like ourselves in the world. It’s also an amazing way to connect with others for tips on how to manage symptoms or other issues; if I wasn’t connected to other autistic people I never would have discovered there are tools to reduce my sensory problems, or found the ability to advocate for myself and what I need rather than shutting up and feeling inadequate for needing help.
Yes to all those. It helped me immensely to understand that I am wired different. But lately I have come to believe it’s dangerous to find these common traits in the context of a mental illness diagnosis. Neurodiverse? Hell yeah. Suffering from ‘Can’t work an 8 hour job’ disorder? No thanks. It’s not a disorder, it’s my body and mind protesting against bad conditions. We don’t have to set up society in such a way that a significant percentage of the population cannot keep up with life tasks. I demand change not as charitable accommodation for a problem I have.
My issue here is not the grouping of people under certain traits, but calling these traits a ‘syndrome’ or ‘disorder’ because a person with these traits is less valuable as human resource within the capitalist work logic. I’m not disordered, the system is.
Yeah particularly with ADHD I feel like many diagnoses are really “incompatible with wageslaving for 40 hours a week” rather than a condition that would, in a vacuum, affect the patient’s quality of life.
Of course many ADHD patients do have real issues with their quality of life even outside of societal obligations (read: work, studies) in the form of e.g. not getting chores done, but as a former “problem child” who nearly had this forced on him back in the day, I firmly believe that there’s a lot of pressure from the school system to get kids on meds just so they’ll sit pretty in class even though the real problem lies in the system.
Unpopular opinion in these circles I’m sure, but:
The US (and the west in general, but especially the US) has a genuine problem with overmedicalization, driven in no small part by for-profit pharmaceutical companies having a financial incentive to sell medication and treatments to people. Part of fixing this problem involves admitting that it also affects autism, ADHD, OCD, etc. diagnoses, and that saying this is not erasure of people affected by those conditions.
Another unpopular opinion: making a medical condition part of your identity is generally not healthy, and if you’re upset about an “anti-autism diagnosis campaign”, there is a chance you have made a medical condition part of your identity.
I say this as someone with a childhood Asperger’s diagnosis who would no longer qualify for any kind of diagnosis.
What’s the source on significant over diagnoses?
Also, how can sacountry workout universal healthcare have such excessive diagnoses when so many aren’t even getting the healthcare at all?
I don’t believe I said the words “significant over diagnoses”. However, for example for ADHD there was a pretty good article in the New York Times last year (scroll down, the page has a bunch of whitespace at the top): https://web.archive.org/web/20250414202754/https://www.nytimes.com/2025/04/13/magazine/adhd-medication-treatment-research.html
These conditions are often diagnosed during childhood and youth, where most Americans are AFAIK covered by national programs as well as their parents’ insurance.
For adult diagnoses, there’s a selection bias towards people who have self-diagnosed and seek confirmation, which will logically lead to a diagnosis rate among patients that exceeds the true incidence of the condition in the general population (due to the selection bias), as well as a slightly or somewhat increased apparent incidence of the condition in the general population (due to people who self-diagnosed without actually qualifying for a diagnosis, but read enough about the condition to effectively lie their way to a diagnosis).
I don’t really see how it affects autism. I guess maybe ABA? I don’t know of any current treatments for it. If anyone’s making real money off of autism, it’s probably fidget toy and earplug manufacturers, and maybe some influencers. If there were serious money to be made then some big companies would likely be pushing back against a lot of the BS lately, but mostly it’s governments + news media (generally right wing) vs independent or small voices.
This cuts both ways. As a person with extremely real AuDHD I actively hide that information from most people because so I don’t have to have this exact fucking conversation with every person I meet. “ADHD huh, you know that’s over diagnosed right?”
Thanks doctor, I’ll make sure I write that information down so I can use it later.
Sometimes it’s even worse, and people get actively hostile about it. “Yeah, I might have a PhD as well if I had an Adderall prescription.”
It’s just not helpful. Let the doctors do their thing. If we catch some false positives then so be it. You worry about you, and let other people worry about themselves.
I was one of those false positives as a kid. It led to me being not just unnecessarily medicated, but near criminally overmedicated. From age 7, I was put on ritalin because I couldn’t focus in class (due to a combination of the fact that I had already learned most of what they were teaching me and some serious undiagnosed PTSD). At the worst, I was put on:
In the end, it turned out that I didn’t have ADD, but actually had PTSD that presented as inattentiveness due to the constant flashbacks I was experiencing. A couple months’ worth of EMDR treatments (which were very much a known technique when I was being medicated) got me to a place where I was able to function enough to hold down a job and take care of myself, but it took me a decade after getting off of those medications for me to be able to recognize that.
My point in all of this is that false positives aren’t harmless, especially when it comes to minors. Yes, that doctor was giving me doses of medication that, today, would be considered criminal, but even being on a quarter of those doses caused significant damage to my long-term ability to function. Not to mention, I was treated as a lab rat the entire time. I was entered into trial runs of various medications against my will, and while some of them (such as clonidine) ended up being valid treatments, a significant part of me feels like the overmedication trend is just another excuse to treat children as science experiments.
That’s honestly horrifying, and I’m so sorry you were subject to that. I’m glad you’re doing better today though!
Well no, what’s happening to you is also because of the general culture of overmedication. If there were less false positives, people wouldn’t distrust your diagnosis. If anything, I’d argue the current culture hurts the people who have serious issues more than the people who have been given a shoddy diagnosis in order to peddle drugs, but both sides are pretty rough.
Did you come to this conclusion by talking to diagnosed people? Because even in the decades where it was massively under diagnosed, I don’t think there’s any time period I could point to and say ‘oh yeah, nobody questions autism diagnoses because they’re so rare!’ It just changes what they say: ‘oh, are you sure? That’s so rare, it’s probably something else!’
I have experienced both sides of this over the decades, and as far as I’m concerned I’d rather cast too wide a net than too small of one, because at least that way more people that need support get it. Being told you’re making it up sucks ass no matter which direction it’s coming from.
You hear people say the same thing about fake service dogs, but they only ever wind up harassing anyone with a service dog because they think it’s their responsibility to be a disability cop.
Paradoxically, I think we have both overmedicalization and a lot of people going untreated who need it. We are still pretty bad at identifying issues early and our for-profit healthcare system blocks a lot of people from being treated who need it. Often having mental health challenges itself limits people’s ability to access treatment.
On one hand i clearly agree with you about the overmedicalization issue, on the other hand there also was an undermedicalization going on for centuries, especially in the autism/ADHD/etc fields. It’s a tough balance to get, cuz the rise of diagnoses may not indicate an overmedicalization, but rather a correction of the undermedicalization (though the risk of overmed. is real, clearly).
And on the medical condition being part of an identity, i also get your point, but it’s also important to consider that making your differences part of your identity makes perfect sense, and for a lot of people their differences come from medical conditions. Conflating the two may be slightly unhealthy, but far less than repressing it as non-subject.
There’s a pendulum swinging towards the middle. Under diagnosis, and then ultra trendy diagnosis, huge self-diagnosis, general personality trend to align with. Now it’s going to swing back, likely towards biomarkers, as the DSM VI is trying to focus on. Can we see this on a scan? If so it exists. And then the DSM XII will be like “fuck that.” Mental health has always wobbled between extremes and somehow found the truth in the middle.
So weighted blanket companies are conspiring to get doctors to diagnose autism?
I don’t know about autism, but there is definitely some of that going on with ADHD for which medical treatment is much more common than for autism.
Autism patients do get prescription meds too, not for autism per se but for the various associated comorbidities (depression, anxiety, sleep meds, etc.). That’s all fine and good when there’s a genuine need for them; the problem is that big pharma has a business interest in making the barrier of prescription as low as possible.
Did you know water drinkers also get prescription meds too? Not for drinking water per se but for the various associated comorbidities with living…
I’m still confused how this is some indictment of autism diagnosis when it seems your issue has nothing to do with autism? Yet the campaign is specifically about autism. Not over-diagnosis of ADHD or depression or anxiety. Why does the one “mental disorder” that doesn’t actually have medical interventions seem to have some of the strongest negative reactions?
Exactly. It’s targeted. All medical conditions have some level of misdiagnosis. Mental illness and developmental disabilities. But people love to just zero in one diagnosis for this discussion which means it’s targeted and there’s an agenda behind it.
Nobody is getting an autism diagnosis to back up their comorbidities of depression and anxiety to get medication. If anything, people having a diagnosis of depression and anxiety is going to be a reason autism gets overlooked. If you want medication, you aren’t going to go through an autism assessment (cost, time, stress, etc) and then be like “oh yeah you know how I’m autistic, don’t you think that means I am depressed too? Pills please!” If that’s your thing you’d just go for the depression.
Autism has zero benefit trying to obtain medication and actually is LESS likely to go straight for medication because if you’re autistic then the first thing to do is make sure you’re not overloading yourself and managing your sensory issues and such before even determining IF there’s a reason to try drugs. Autisms first line of defense is environmental factors, self care, learning how to manage your energy and capacity, accommodations. The last resort is medication. Ffs I wish people would have a clue what they’re talking about sometimes.
This exact same phenomenon applies to almost any mental disorder. And I use the term mental disorder loosely here, as I’m one of the people who doesn’t believe mild cases of autism are even worth diagnosing.
The reason it applies to autism too is that any diagnosis makes you a customer of the medical industry; the customer relationship doesn’t end when you receive a diagnosis, that’s when it starts. They may not be able to sell you autism medicine (yet), but they can sell you all sorts of other medicine and therapy.
So autism diagnosis are bad because they’re trying to hook you on the drug of getting diagnoses and eventually given people medications maybe decades after their diagnosis?
They can already hook you on xanax, sleeping pills, medical marijuana…
Medical marijuana is prescribed to people with autism in my state, so I don’t give it much longer before they can.
Individuals should not be making their own medical or psychological diagnoses. Correct.
Perfectly fine statement to make in a vacuum, but in the real world there are massive hurdles and downsides to getting diagnosed. I’ve interacted with more than one psych who has basically said that of those who have sought an adult diagnosis with him, they’re rarely wrong. Any image you have in your mind of hordes of neurotypical people making up that they’re autistic is based on prejudice, not reality.
There’s also not a single way to determine if someone is on the spectrum; a psych can run a test wrong or make wrong judgements, and a person doesn’t need a degree to know they have sensory meltdowns or can’t keep up socially to save their life. The idea that doctors are the only ones with insight into health (ESPECIALLY mental health) is something best left in the first half of the 20th century.
I also feel that making me self-diagnose with a disorder would be very useful for keeping me small and powerless. If the specific way my mind works doesn’t please late stage capitalism, late stage capitalism and its ‘helpful’ disgnoses can fuck right off while I go take a nap as nature intended.
That’s a valid way to feel, but for many people on the spectrum it’s the exact opposite. A diagnosis is an answer for why in NT spaces we often feel constantly misunderstood and out of place, and reassurance that we aren’t the only people like ourselves in the world. It’s also an amazing way to connect with others for tips on how to manage symptoms or other issues; if I wasn’t connected to other autistic people I never would have discovered there are tools to reduce my sensory problems, or found the ability to advocate for myself and what I need rather than shutting up and feeling inadequate for needing help.
Yes to all those. It helped me immensely to understand that I am wired different. But lately I have come to believe it’s dangerous to find these common traits in the context of a mental illness diagnosis. Neurodiverse? Hell yeah. Suffering from ‘Can’t work an 8 hour job’ disorder? No thanks. It’s not a disorder, it’s my body and mind protesting against bad conditions. We don’t have to set up society in such a way that a significant percentage of the population cannot keep up with life tasks. I demand change not as charitable accommodation for a problem I have.
My issue here is not the grouping of people under certain traits, but calling these traits a ‘syndrome’ or ‘disorder’ because a person with these traits is less valuable as human resource within the capitalist work logic. I’m not disordered, the system is.
Yeah particularly with ADHD I feel like many diagnoses are really “incompatible with wageslaving for 40 hours a week” rather than a condition that would, in a vacuum, affect the patient’s quality of life.
Of course many ADHD patients do have real issues with their quality of life even outside of societal obligations (read: work, studies) in the form of e.g. not getting chores done, but as a former “problem child” who nearly had this forced on him back in the day, I firmly believe that there’s a lot of pressure from the school system to get kids on meds just so they’ll sit pretty in class even though the real problem lies in the system.